Discussion about this post

User's avatar
Lisa Wallace's avatar

Thanks for this interview, part 1, both Rob and Awais.

What I found most disturbing in enduring many psychiatric detentions myself was the lack of even reasonable legal representation. Never did the lawyer assigned meet with me before the hearing, other than minutes before in a brief introduction, and none was prepared to argue in my defense if I needed to challenge previous notes in my records or explain why I could access mental health services better while free in the community.

I don't know that legitimacy of DSM diagnoses or biomarkers for mental illness need or should come into arguments about forced psychiatric care, in the sense that patients fighting detention or conservatorship are often not disagreeing with a diagnosis or need for some kind of treatment, but more about having their own agency in it all and being heard as far as their own insights and intelligence.

What I'd like to see regarding the overload of positive in seeking help, via such mental campaigns as NAMI and other organizations promote, is some balance. For instance, NAMI could do much more toward research in transparency around detentions, maybe also in poor ECT and medicating outcomes, and perhaps offer more help specifically for patients in meds withdrawal or in some kind of harm from treatment. Also, I witness too many mental health professionals shutting down any patients complaints about treatment as discouraging people from searching out "life-saving" treatment, when it isn't always life-saving but may improve life quality, and so the language is too strong, not reflecting either that there's no guarantee treatment will be good. Conversely, some harmed patients are trapped in narratives that all mental health treatment is based on sham diagnoses and introduces mistreatment, coercion, neurotoxic drugs, and brain damage, and that's also too strong of language, not reflecting that indeed many patients are helped, do need treatment in a very legitimate way, and understand the drawbacks of certain treatments.

I think both sides promote polarization when subtleties are overlooked.

And, again, patients deserve proper legal presentation at psychiatric detention hearings, along with less acceptance that past psych notes are completely accurate and that the psychiatrist's recommendation is always the best way to proceed.

Expand full comment
Jonah Davids's avatar

Great interview. I’m going to pick up his book. I’m not familiar with the literature, but I imagine even if most deinstitutionalized patients fared alright, a sizable dysfunctional minority could still have a big impact.

Expand full comment
14 more comments...

No posts