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Joseph Meyer's avatar

One thing I gather from these kind of conversations is that all of us have anecdotal experiences that bias our thinking. It is even a problem in academia where biologists, psychologists, sociologists, criminologists, and social workers with terminal degrees hold perspectives that are often somewhat characteristic of their academic disciplines. We have to be constantly on guard to avoid concluding that our experiences are the experiences of others, or that our thinking is correct. I recognize that my education in biology and statistics biases me toward the more biological perspectives. But I try to avoid confirmation bias by reading and considering the perspectives of others. I do not think Wipond tries very hard to balance his point of view with conflicting perspectives.

I know other parents who have hospitalized their adult children dozens of times and I wonder if that is doing the same thing and hoping for a different result. It is not something I would choose for my daughter. On the other hand, a friend of mine has a son who had a psychotic break in college and was diagnosed with schizophrenia. He has experienced a near awakening on medication and is doing great, having now graduated from college.

If Wipond read memoirs written by Dr. Elyn Saks and Dr. Kay Redfield Jamison, he would know of two highly-education and successful individuals with schizophrenia and bipolar disorder who concluded after many relapses that medication is crucial to their stability. Their decisions and the decisions of parent caregivers are medically and morally difficult ones. Although I am unsure of Jamison's thinking about the issue, I do know that Saks recognizes the importance of respecting civil liberties and that she has worked to promote the civil liberties of patients. As demonstrated by my decision to not even attempt to involuntarily hospitalize my daughter, I fully agree that civil liberties are an important but not the only consideration. I agree with Dr. Aftab that developing psychiatric care that patients want to seek is a way to minimize the need for involuntary care. Dental and maternity care are examples of medical fields that have become more comfortable for their patients in recent decades. Psychiatry should do the same. But if the mind and the ability to make rational choices is a product of a healthy brain, there is a continuing role for involuntary care in rare cases.

As founder of Inner Compass Initiative and its association with The Withdrawal Project, my guess is that Wipond probably believes my daughter would be better off without medication. My daughter is able to function in society despite her persistent delusional beliefs, which have not resolved despite medication. And, she has tried many medications with limited efficacy. That has made me question if she should try discontinuing medication. I have even raised the question with her psychiatrist. But that decision is between her and her doctor. And the possibility that her symptoms could become worse without medication, perhaps permanently, gives me pause. A successful acquaintance of mine, who was a certified peer support specialist, decided to discontinue medication and soon became entangled in the criminal justice system with felony convictions that led to a lengthy jail stay. He still is not doing well and may never regain his previous level of recovery. Wipond's statement that persons without mental illness engage in criminal behavior is offensive in its attempt to dispense with consideration of a real risk, which solid studies have found elevated by several fold in the population of those with untreated serious mental illnesses. Such coldhearted and disingenuous reasoning is used in the U.S. to continue jailing and even executing persons with profound psychiatric illnesses, just like everyone else, rather than finding a more humane and intelligent way of responding to illnesses that have behavioral symptoms.

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Lisa Wallace's avatar

I'm very glad you two had this conversation, with so many important points about involuntary treatment debated. I'm left thinking about how competent, caring psychiatrists (and other mental health clinicians) make such a difference while incompetent, inflexible ones reinforce bad treatment experiences or inflict more of them. Even in the worst inpatient situations, I've found one or two staff who respected me enough, were honest enough, to help me through, maybe even inspiring some hope. I have faith in the newer generation of clinicians I've seen, the ones I've been lucky to come across.

I've been through years of "bad treatment" that included sometimes nonsensical and unhelpful medicating and many, many involuntary hospitalizations. When a psychiatrist stopped 5 meds without tapering, leading to a dangerous and lengthy withdrawal period, I was disillusioned, angry at all of psychiatry and constantly spouting criticism. My process in recovering ultimately led me back to medication because bipolar didn't just go away. I found a psychiatrist of my choice this time, who gives me his full attention and is transparent about what meds can do. Thankfully, the ONE medication this time around is making a big difference in leveling moods and giving me confidence to connect with people in the outside world. Staying stuck in hating psychiatry would've left me in a sort of limbo, a resignation that my life would get no better, constantly hoping I'd pass in my sleep, and isolated in my suffering.

Wouldn't it be great to have unlocked psych facilities, community counselors with unlimited and paid time to know and assist people in crisis, care (even when involuntary) that's warm and inviting, elimination of the dehumanizing process when being taken into a hospital, a decrease in mental health professionals' liability concerns, a slowing of society, at least enough that quick solutions would become less appealing, and general views that everyone is equal in value and insight?

I believe that in the here and now we can call out cruel patient treatment, protect patients' rights more effectively, and discourage arrogance that some psychiatrists carry as if they know better and are not to be challenged (which is likely just covering up their own insecurities anyway). Perhaps we might collectively reject old style and unenlightened practices as they are occurring, stomping on them as relentlessly as many patients are under psychiatric detention.

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