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Brigid Bowen's avatar

This is an extraordinary post -- can you call it a post? Incredible Susan - thank you for sharing so deeply, writing so beautifully, being so searingly honest and demonstrating power of reflection in the face of complexity ... So much worth quoting..✨

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Beth Meyer's avatar

Dr. Mahler, I’m so impressed with your post. I especially appreciate your willingness and ability to expose your vulnerabilities to an audience. I thought I would write about the ‘adverse events’ I experienced during ECT treatment.

I have treatment-resistant depression and have been through the usual gamut of treatments-SSRIs, SNRIs, adjunct stimulants and anti-psychotics, inpatient care, IOPs, individual and group therapy. I heard about TMS and had high hopes, which quickly crashed. At that point, like you, I felt desperate enough to try ECT. Since this was a short time before the interest in psychedelics for treatment of depression, I felt this was the ‘last stop’ before pursuing the more invasive Vagus Nerve Stimulation. I understand statistics and methodology and so I was confident that ECT was an effective treatment for depression. But I was still anxious about the method.

After having my vitals checked by a nurse, along with administering a PHQ-9 (really? I was fairly sure I had it memorized), I walked across the hall and laid on a gurney. I was introduced to the Respiratory Therapist, standing above my head, taping electrodes on my forehead; the anesthesiologist at my left elbow, preparing his various potions to knock me out very briefly; a nurse at my feet, who smiled encouragingly at me; and finally, the psychiatrist at my right elbow, who explained the function of the dials on the black box behind him. The box that would send a current of electricity to one side of my brain sufficient to induce a seizure. Then it was over and all was well for the first 7-8 treatments.

Then I woke up from a session and multiple nurses were scurrying around me, instead of the usual calm monitoring of a single nurse. I was asked if I had eaten or drunk anything before the treatment? Of course not, I answered indignantly. But my blood oxygen level was stubbornly staying at an insufficient 85, unless I was on a high level of oxygen. They called EMS to deliver me to the ‘medical’ hospital a mere 4/10s mile away (that’s the distance we were billed for). I spent 3 days in the hospital with aspiration pneumonia being infused with antibiotics as they slowly stepped down the oxygen levels I was receiving. I had to delay ECT a couple of weeks until my cough cleared.

A month later I had finished with the acute treatment phase and was having the first of six monthly maintenance treatments. Afterwards, there was once again much scurrying about me. I became aware that my chest was hurting. I was also aware of doctors and nurses whispering to my husband in the hall. But they put me in the wheelchair as usual and walked me down to the elevator with my husband and the nurse and I waited for our car. The slip of paper I was given that had always stated the date and time of my next treatment just said “No More Treatments.” I was so confused.

It was left to my husband when I got in the car to explain it all. He said my heart had stopped for two minutes following the seizure. A brief pause was expected, and apparently protocol dictated that they observe me for 30 seconds, and then the anesthesiologist gave me chest compressions for 90 seconds, at which point my heart started. No wonder my chest hurt.

They just told my husband to take me home. Instead, he called our PCP, who was alarmed by the story and told us to go straight to his office. The ECG he administered was normal. But he called my cardiologist to see if she could check me and decide if I should be observed on a telemetry unit. She said to come straight to her office. She also administered an ECG, which was also normal. After some thought, she sent me home with a Holter monitor and I was monitored remotely. I had no more incidents.

My ribs continued to hurt for four months. I had X-rays taken but, as my PCP and the radiology tech told me, micro fractures sometimes don’t show up without more advanced imaging. The pain interfered with my job of working with students with severe disabilities but I kept at it because I was in shock about the whole thing. The final chapter of my ECT experience (I hope) came about 18 months later. At that point, I sat in a nephrologist’s office as she questioned me about how my blood work had, a year before, started showing that my kidneys were no longer up to par. In fact, they were operating at about 45% of normal functioning. She asked if I had any issues with my heart. I told her I had a cardiac arrest during an ECT treatment. Chest compressions?, she asked. I answered affirmatively. She nodded and said that would have been enough to damage my kidneys.

Psychiatrists have told me that each of my ‘adverse events’ were one in a thousand to ten-thousand events. But they and their aftermath were traumatic to me. They have also made me angry, particularly because the kidney damage prevents me from taking some types of medication that would help me with other issues.

I am not ambivalent about ECT. Despite the persuasive statistics, I would be very upfront about my experiences with anyone who asked my opinion. Fortunately, five years later, I am doing well with Spravato treatments.

Thank you again for the article, and if you’ve read to this point, thank you for reading my ECT story.

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