Discussion about this post

User's avatar
Emily's avatar

I have been pondering this issue for a while, particularly in Australia, where debates around public disability services have become highly politicised. In public discourse, psychosocial disabilities are often viewed as less impairing than physical or intellectual disabilities. However, a person with a severe physical or intellectual disability who is likeable, easy to get along with, and able to communicate their needs and concerns clearly and respectfully will generally have a much easier time accessing help and services than someone who is demanding, rude, belligerent, and—as you put it—“exasperating”.

People will go out of their way to help someone in need who is likeable. And despite the idea that we are an increasingly individualistic society, the ability to engage respectfully and effectively with others remains essential to living well in society—particularly when someone needs to interact with services on a regular basis. When I discuss these cases with others and point out that a person’s support needs are high because of their difficulty relating to people, the immediate response is often that the person needs to “learn” to ask for help in appropriate ways, and that services and support should be withheld until they do. But if natural consequences were sufficient for this individual to learn socially acceptable behaviour, it would have worked by now. They cannot learn social norms through natural consequences—that is precisely why they are disabled. It would be akin to suggesting that a paraplegic could get around better if people stopped “enabling” them by providing wheelchairs or assisting with transfers.

This article will probably attract some criticism (but hey, what else is new!), yet I think it is the most important and timely piece you have written. We have to talk about this issue, because ignoring it does not solve anything and, in many ways, is making things worse. I recently read a study that found that just 0.1% of callers to a suicide crisis phone line accounted for over 60% of calls received, with these frequent callers receiving an average of 160 hours of counselling per year (https://journals.sagepub.com/doi/full/10.1177/00048674251361753). I can’t help but think that if those hours were delivered as focused, intentional, long-term psychotherapy, the burden on crisis services might be reduced—although getting people to engage in regular therapy instead of repeated crisis-line use is a challenge in itself.

In any case, thank you for highlighting this issue. I work with clients who fall into this category, and supporting them requires an honest and realistic acknowledgement of their difficult interpersonal style, compassion for their struggles, compassion for the challenges faced by carers and service providers, hope that change is possible with time, perseverance, and resources, very clear boundaries, and a good sense of humour.

Susan T. Mahler, MD's avatar

This piece made me think a lot about a number of things. There are gradations among the people you talk about- those who are violent and commit actually crimes, others whose personalities make dealing with chronic illness more challenging for those around them.Those whom we really fear and those whom we would prefer not to deal with.

I think a fundamental question you raise is not being able to treat someone as a moral equal. I think when we get to that point, as clinicians or family members, we have a problem both for ourselves and the ill person. Not being held morally accountable and not being a full partner leads to a power imbalance, to shame for the patient and resentment for the clinician or other party. And Psychiatry does people a disservice if we deliver the message that mental illness implies a lack of accountability.

Donald Winnicott's paper "The Use of an Object" comes to mind- the idea that the job is to withstand the attempt to destroy the other person- but then to circle back later and say, "hey, you know you almost destroyed us." Clare Winnicott wrote about her experience working with evacuated children in Britain in WWII, and described having to put a violent child outside the door until he could get himself in control. (Face to Face with Children: The Life and Work of Clare Winnnicott.)

This may be an ideal, but it seems like when someone is this difficult the thing to discuss is how difficult they are, and how alienating that is. When we can't do that, or our countertransference gets the better of us, at least to part with the message of how we see the problem, and try not to inflict harm.

7 more comments...

No posts

Ready for more?